Why is Calvin so happy? Because he (finally) passed his swallow test and now we can get that awful tube out of his nose!And go home soon!!!“WHAT?! This isn’t my home???”I can see why you would be confused, dear Calvin.You have lived here in the PICU longer than you’ve lived in your home.You have also […]
Archives for April 2014
Waiting for Calvin to eat and grow is tiring. At least we can snuggle with him on our couch/bed! That’s the best. We have fun too, while we wait. And dress him in clothes again! YAY! His swallowing seems to be getting better each day! We are so glad, because some kids never learn how […]
This week has been one full of answered prayers. Calvin seems to be pretty much done withdrawing from the sedatives -finally! It was heart breaking seeing him go through it again, but this time was so much better. He didn’t have his breathing tube in, so we could hold him whenever we wanted! When he […]
Our little warrior’s battle wounds: Here you can see the scar on his back from the fetal surgery, his neck from the decompression, and the shunt which is behind his right ear. He is SOOO tough. Someday the girls are going to think his scars are hot.
Our rock – in the rocking chair. The other day some well wishers came by to visit. It was about half an hour after Calvin had had his major desat and totally stopped breathing on his own. I was a basket of nerves, holding onto Calvin and staring at the monitor. The last thing I […]