This week has been one full of answered prayers.
Calvin seems to be pretty much done withdrawing from the sedatives -finally!
It was heart breaking seeing him go through it again, but this time was so much better.
He didn’t have his breathing tube in, so we could hold him whenever we wanted!
When he cried, we could hear it, and comfort him.
And with each cry, his lungs got clearer and stronger.
So we just rocked him and felt so, so blessed as he cried and cried.
We probably looked freakish to anyone walking by our room –
rocking our screaming baby for hours, while grinning from ear to ear!
Each day we slowly weaned him from the high flow oxygen and yesterday we turned it off completely!
It was pretty nerve-wracking to hold him without any breathing stimulation at all, and just wait and watch.
But he did so great, and now it’s been almost 24 hours without any assistance at all.
He’s had a few desats but recovered quickly with no intervention.
We are still feeding him through his feeding tube because he has failed a few swallow screens.
The part of the brain that tells you to breathe is also the part that tells you how to swallow, so he’s been struggling with that.
He is SO hungry all the time and wants to eat so bad!
He has actually lost weight since we got here almost 3 weeks ago.
He was almost 7 lbs and is now a little over 6.5 lbs.
We are working with him constantly on remembering how to swallow.
It is just taking time,
We are doing pretty much exactly what we did in the NICU 2 months ago – working on feeding and growing.
It sort of feels like we are starting all over again.
It is taking a lot of patience, but we can do that!
If there is one thing we have learned, it’s how to be patient with our little man.
And it’s so much easier now that we can play with him and hold him and walk around with him.
It’s the best!
We are so happy Calvin decided to stick around and feel so blessed and grateful for every second we have with him!