As we left the sleep study, the tech told us to expect results in 2-4 days.
About 3 hours after we left I got a call from the sleep study reading Dr.
“Is this Calvin’s mom?”
Yes, his mother and personal secretary – this kid gets WAY more phone calls than me….
“Ummmm, Calvin had a pretttttty significant sleep study…”
No kidding? weird.
Calvin’s apnea index actually went down, so now instead of being 20 times more than it should be, it’s only 10 times more. Still, it’s way too high.
The Pulmonologist called a little while after that and told me if Calvin had any other parents, he would be pushing for a trach. However, our combined medical backgrounds (and plethora of collected medical supplies in our home) allows us to be qualified to manage his airway and breathing on our own for now.
(Though I think it’s party medical background but more being paranoid parents.)
So oxygen and continuous monitoring will continue to be the temporary fix until,
da da da daaaa,
more brain surgery!
We met with Calvin’s new neurosurgeon last week (who is 2 hours away) to review the results of his MRI.
His ventricles, which were initially WAY too big – enter shunt – are now too small, or “slit”.
His neurosurgeon believes the shunt is suctioned to his brain, and so brain matter is clogging it, or something like that, I sort of stopped listening while she explained it (a. gross and b. Nate was there, I figured he was listening) and so probably the shunt is not working correctly. Hopefully that’s the reason behind his apnea.
“Is there any way to tell if the shunt is working correctly besides opening up his brain and checking?”
“Oh. Right, makes sense. Great.”
($10,000 to anyone who can invent a way to tell if a shunt is working or not without brain surgery.)
we are hoping that
a) his shunt is not working (if)
b) there is an easy fix and
c) that’s the reason he is not breathing on a regular basis
So his surgery is scheduled for early next week.
He needs a haircut anyway.
Calvin’s seat while I’m on the computer.